Saturday, May 18, 2013

A New Day

Dawson has had a very eventful day.  This morning they changed the dressing on his legs, then he had plasmapheresis, and then...drum roll please...the breathing tube was removed - all before noon!  His removal of the tube went amazing.  They turned off his propofol (yep, the Michael Jackson drug) and told me he'd wake up in 10-30 minutes.  About 3 minutes later, he was waking up.  It was really hard to watch at first - he was so confused and scared and just wanted that tube out. 

Once the tube was removed, we really saw his stubbornness.  All he wanted was a drink of water...and he repeated it over and over and over.  And over.  Did I mention and over?  They let him have some here and there, but wanted to wait about 4 hours before really letting him go to town.  Still, he was so insistent on having water that I think he ended up getting about 8 ounces (and 2 Popsicles) over about an hour before he finally fell back asleep. Luckily, when he wakes up his water restriction will be removed.  He'll be so darn excited.

We still don't know much about the extend of the injury to his legs.  He has black ("dead") spots on his legs, and they are both purple and completely covered in blisters.  We will be working to fight infection and just keep an eye on how things are progressing.  One of the specialists stopped by after Dawson woke up, and he mentioned that his legs are actually a little encouraging, because they are not all black right now, only some spots.  It hurts my chest, the amount that I am hoping and praying this all works out for Dawson.

Beyond that, everything else is still looking great.  And he certainly showed the doctors and nurses here what an attitude and a great set of lungs he has, that's for sure.  Oddly enough, I was That Mom, whose kid was just a screaming, while I sat there smiling and holding his hand and gently shushing him.  Man, I have never, EVER been so happy to hear a kid scream in my life!

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